Posted in Fibromyalgia

My Fibromyalgia Journey 2018 Edition

Almost 5 years ago I got really sick and never got better. One day in February 2014 I was dancing at a dance competition and the next, I couldn’t get off the couch. It wasn’t too sudden because I had been getting colds and stomach bugs every other week or so for the past month and just had been starting to feel like there was something wrong. But I still remember to this day, sitting on stage at the award assembly and it hit my like a ton of bricks. I look out into the crowd for my mom because I just felt so terrible. Later on when we got home, I basically lived on the couch. I went to the doctors SO many times in those couple months and had my blood drawn countless times. Each time they were all negative except for a vitamin d deficiency which is no surprise since I’m a redhead. We went to several doctors trying to figure out what was wrong but one told me it’s just anxiety and to go back to school, the other put me on a cleanse and food allergy test thing and then never contacted me again even when we tried to, and my main doctor thought it was all in my stomach even though that had pretty much been fixed when we discovered my food allergies. Finally my main doctor realized it wasn’t all in my stomach after my mom wrote a letter telling them all my different and random symptoms. Finally they gave us a referral to Children’s Hospital in Fresno and I got and appointment in late April 2014. That was where I was finally diagnosed with fibromyalgia. The doctor was amazing and talked with us for hours asking questions and then explaining the diagnosis. I was so relieved to finally know what was wrong with me and that it wasn’t going to kill me. I wasn’t going to die from this. The doctor ordered 9 blood test (crazy right?!) and told us to go on the internet and do a whole bunch of research because none of the meds for fibro are approved for kids and I am so grateful that I was never put on those drugs. After we knew what was wrong with me, we just did so much research. During all of this I was on home hospital and stayed on it till the end of the school year. In 8th grade, the next year, I tried to go back, but only for 2 periods and the rest home schooled. I couldn’t even do that and had to be full time home schooled. Then, in December 2014, I started the guaifenesin protocol because I figured what else do I have to lose, it won’t harm me, and it has helped so others. 7 months later, I’m back in school as a freshmen and feeling better. Ok, not regular school, but still school. I did 2 classes at a regular school and did the rest at and independent one. I succeeded in what I tried to do in the previous year. I did this for my freshmen and sophomore years and just continued to get better and better. Every month I would notice myself feeling better in small ways and it just made me so happy. I was dancing at school and starting to feel like me again. It was amazing! This protocol was saving my life and letting me get my life back. Junior year I ended up taking 7 classes in total, 3 at regular school and 4 at independence which was a lot, but I did it. This is also when my migraines hit but I was able to make them not as bad with a daith piercing and several other things. At the end of my junior year I went in to talk with my counselor about maybe coming back to the main high school for my senior year. I was prepared for a no because I thought I wouldn’t be able to. When she told me I could, I thought I was dreaming. Now 5 years ago if you had told me I would be able to graduate at a regular high school, I would have called you crazy. I thought I was going to have to get my GED and had no idea what would happen after that. But here I am, 5 years later, at a normal high school and doing amazing! I only have 4 classes my senior year, which is great and I’m doing great in school. I’m getting all a’s and my attendance has been great. Freshmen year first quarter was about 60ish% and my senior year was a little over 90%… This is incredible! I’m not only doing well in school, my health is doing so much better. I’m starting to be able to actually function and live my life. I can hang out with friends and do the things I love without recovering for a week or more. If you had told me I would be where I am today just 5 years ago, I would have thought you were crazy and needed a reality check. That, or there was some magical thing that would happen that would make me all better. I could barely get off the couch! How was I supposed to be able to go to school and function like I am. Myself 5 years ago never thought that the me I am today was possible, yet here I am. I’m going to graduate in a couple months, I’m so happy, and just living life to the best of my ability. My illness is no longer the thing in my life that isn’t letting me do anything ever, it’s now just the little annoying thing that I have grown accustomed to and can live with. It’s gotten so much better that I can picture my future and actually see myself doing something with my life and helping others like I want to. I can’t wait to see what the next 5 years have in store. I think it is going to surprise me with how amazing it will be. To the Lilia from 5 years ago, you made it! Life is better and just continues to get better and better every day. And to the Lilia 5 years from now, I can’t wait to see what you have accomplished. I know it is going to be something the you 10 years ago never would have dreamed of. I believe in you. Sincerely, the Lilia from 2018

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Author:

I'm a 18 year old living with Fibromyalgia and want to share my journey, what Fibromyalgia has taught me, encouragement, and how I deal with it. Youtube: https://www.youtube.com/channel/UCigwrE1hAqkiJrJl4GAA8uQ

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